Tuesday, September 21, 2010

5 week update

Although we're pretty sleep deprived around here, I can't seem to relax. Too much excitement that our family is all under one roof.

The little miss has been working her daddy pretty good. He can't seem to put her down and they are having a love-fest. Thankfully, James been on parental leave since we brought her home. The not so good news is that he
goes back to work on Monday. I think the kids and I are going to have some major withdrawal.

I wanted to share a couple of big moments from the last 24 hours:

1. Both kids are sound asleep in their own beds right now ... napping at the same time. We are truly enjoying the little things these days. I want to cuddle up next to both of them. I never thought I'd be so thankful to have kids in both beds. Before all this happened I took for granted that it would just be that way - thank you, Lord, for restoring that to us!

2. The best moment of the last 24 hours ... drum roll ... the nephrologist called and PK's levels have improved so much that we doing a consult with the surgeon on Monday to plan for removing the dialysis catheter! When the surgeon's scheduler called us back yesterday she said the doctor said, "She's already home?" Needless to say, miracles continue to abound.

James' email from earlier this week is below as well as a couple of specific prayer requests. Thank you again for your love and support. We continue to be amazed by the power of prayer and the gift of friendship. She's getting there and we know each of your prayers are a part of her recovery. - Sarah

p.s. I know you all love pictures ... good thing one of her grandmother's is a photographer. I have a feeling she'll be working her, too. ;-) Another one is attached.

From: James Lary
Sent: Mon, September 6, 2010 11:46:47 PM
Subject: [TNS@FBD] Re: Porter Kate Lary - Update Monday

Five weeks!! Five weeks? That is all? Before this, five weeks didn't seem like a long time. Now, five weeks feels like an eternity. It is funny how slowly time goes when you are taking everything one day at a time. Oh, and being home with your baby is a million times better than leaving her at the NICU each night.

Sarah posted a picture of PK on the blog (http://porterkate.blogspot.com) of what she looked like hypothermic and hooked up to the machines. An unbelievable site. We continued to be blessed by her progress. We didn't get a call on her labs last week, which is good, so the hope is that we won't get a call on her labs tomorrow. We see the nephrologist and do another EEG with the neurologist a week from Thursday. We pray that those two appointments go well.

At home we have been working on our schedule of bottle and breast feeds, while taking into account Luke's schedule and our sleep. We have been diligently tracking her input in milliliters via bottle or minutes nursing and tracking her output by continuing to weigh each diaper. Because of the kidney issues, we need to make sure her input is greater than her output. Sarah and her mother were laughing at me because I went to Kinkos and had a spiral bound booklet made of a spreadsheet I created to track all of our info. What can I say, I am a tad ocd.

Also, if you have not already done so, please remember to send a note to porterkatelary@yahoo.com with your location. If you missed this email because you thought it was duplicate, this was set up by friends of ours who thought it would be fun to get the numerous locations of the people who have been praying for Porter. We know that Porter would not be where she is today without the prayers of so many, and this is a fun to way see just how widespread the network of people is, who have been praying for Porter.

The Prayers:
1. Pray that her potassium level stays at normal level.
2. Pray that her kidneys continue to improve dropping the creatinine level
3. Pray that her input continues to be greater than her output, showing
4. Pray that dialysis is not needed and the dialysis catheter can be removed.
5. Pray that the seizures were an isolated incident and do not return.
6. Pray that Porter has the strength and determination only God can give to keep improving.

God Bless,

No comments:

Post a Comment