Thank you everyone for your prayers. These emails have been making their way to
so many people and the response has been so unbelievable and overwhelming. Even
more amazing is that we have seen God at work with answered prayers. She is our
miracle baby. We have come so far from my witnessing the operating room chaos
of 8 doctors and nurses bring life back to PK 13 days ago. Sarah and I gain so
much encouragement knowing you are praying and from the emails, texts, and
calls. We will never be able to repay each of you, but we do thank you.
God is Good. Another very positive day. The creatinine level dropped 33% from
yesterday's level. So in 48 hours her creatinine level has dropped 53%. So
blessed by this news. Still a ways from normal, but encouraging we haven't seen
a slow down. The nephrologist was very pleased to see this and remained very
confident that her kidneys will still pick up. There is no timing for this, but
we know they will be collecting information over the next days and weeks. Funny
how two weeks ago, I had never heard of creatinine, and now that is all I think
Her EEG came back with improvements, but there were still some small indications
that there may be a possibility for seizures, so for now, she is staying on the
medication. It has been 8 days since the seizure activity so either the
medicine is working or it was an isolated incident. The neurologist visited
today while she was screaming because she was hungry. He was pleased with that
reaction. I have learned that Drs are always happy to hear a baby in the NICU
crying, parents and nurses not so much.
She has been taking a good sized bottle at each feeding, so no more feeding
tube. We can finally start making a dent in Sarah's milk supply, but Sarah has
been producing so much that I am in the market for a small deep freeze. Sarah
is a competitive person, and when the doctors said the best thing she could do
was pump for Porter, she took that as a challenge. Sarah is now feeding 1/2
of the Medical City NICU.
1. Pray that Porter's kidneys kick into full gear so that the dialysis is
2. Pray that creatinine level continues to drop so we can get to a normal level.
3. Pray that the seizures were an isolated incident and do not return.
4. Pray that Porter has the strength and determination only God can give to keep